It is the eve of the JDRF walk for diabetes. This will be the second year we have participated in William's short five year life.
He was diagnosed at 20 months-a baby still in diapers with no idea why this awful hospital trip was happening to him.
I remember his diagnosis at the pediatrician's office. They checked his blood sugar and came back with a reading of 491. She said, "I'm sorry, sweetie. William is diabetic and needs to go to the emergency room immediately." I was shocked, scared, and full of dread, as the prospect of what was to come loomed. It was every bit as horrible as I imagined it, culminating with the nurses' (plural) inabilities to start an IV on my little boy's small veins. I don't like to remember, but feel that I should document it for his sake.
Since then, he has endured countless finger pricks, injections, pump change-outs, highs, lows, infections, ketone checks, and hours of fear and pain.
Diabetes is not a death sentence. It is more a life sentence. It never stops and it can never be ignored. It is constant and requires vigilance.
As a parent, I have come to realize that I cannot rest easily unless I know that his blood sugar level is stable. That is something which John and I can control. But what happens when he is in college? An adult on his own? Our fears are real and constant.
There must be something positive that comes from having a child with type 1 diabetes. There has to be.